Erin, you must have gone through so much anguish with that diagnosis. I can't even imagine. I think many people would have aborted that perfectly healthy baby if they were in your shoes, just relying on the first bad test, and they would do it out of fear.
However, I am still not convinces that aborting a malformed fetus which would be born to live in pain is a loving choice. Pain is not always bad. My dad was in a land mine accident as a child and his body was badly and permanently mangled. He was in a horrible pain but went on to have a full and happy life. Somehow, I don't feel we have the authority to judge whether someone's life will be worth living before they are even born.